Skip to main content

A Diagnosis...

Nervous is understatement...

I discuss my health from time to time but often I keep it to myself for the most part as I see it as a negative.. I don't want to seem like I am whining or complaining. I do realize though that there are other people out there struggling like me. Some people are open and some choose not to be and whichever we decide that is OUR choice.

Some years back I started developing issues with my knees... occasionally other joints but mostly my knees, especially after long days of walking and catching a bus around this big city. Jacksonville is huge and our transportation system is less than desirable but that's a different blog topic all together. I think the icing on the cake was the year I waitressed. That was ROUGH.. I was often in pain and now I am paying for it all, big time. Looking back I can see other triggers from long days in the sun to less than desirable food choices. All in all, a life of a struggling single mama working hard has caught up to me.

About 2 and half to 3 years ago the hives started. Not super painful at first, more frustrating than anything, but since then it has all gotten progressively worse. Not only do I get hives but I get large knots, especially on the soles of my feet.. I swell in random places from my lips to my fingers and toes. I get stiff, sore and sometimes I feel like all I want to do is cry. It is so very painful. Walking up stairs, especially after super busy days is literally a nightmare and we have a 2 story home.

I had insurance then lost insurance then gained new insurance. The primary doctor I had seemed to be unconcerned and tossing me back and forth on tests without answers or solutions, not even looking at the photos of episodes I took to show  him. To say this was frustrating is an understatement. There were nights where I have stayed awake in pain for hours unable to fall asleep with nothing to relieve me, I am also allergic to most anti-inflammatory medications making it all quite difficult to treat with any type of quickness. Thankfully I am married to a very strong man who literally carries me when I can't move.

Around a year ago things got very bad. For the first time in my life I was dealing with high blood pressure and my hive breakouts were lasting weeks at a time. I was in a very high stress job and it was not helping at all. With encouragement from my husband and family I took a part-time job and left the stressful dental world. Of course that doesn't make paying the bills easier so insert new struggles and hard work and here we are. I found a new primary practice after being referred by a friend only to find another friend works there which gave me even more hope that I had finally found a doctor looking to help me AND to top it off she didn't try to push a bunch of meds on me immediately. She ordered up some blood work that they do in office and now I will hopefully get some answers that I have been looking for. Not to mention it helps to have a diagnosis. Part of me feels like without the answer people don't always truly understand what I am dealing with and we're back to me feeling guilty for my health issues. It can be a stressful inner battle and all we know for now is it is something with my autoimmune system...

This to say I know I am scared but I know I am not alone. I am at a point where my children are older, I have an amazingly supportive husband who is always at my side. Family, friends and loved ones that are just amazing. As things have happened I have often turned to reading blogs of others and how they've handled it all. It helps to know you aren't alone so here I am putting my struggle with this all to help you and to help me. Yes I am a little scared to get called in for the results but I know I am never alone ❤


Comments

Popular posts from this blog

My Mother's Day Nightmare

May 13, 2018.. Mother's Day.

I worked an event.. I am always working.. helping coordinate a yearly brunch for my friend Chef X I was gone from about 8am until we got home about 6pm. I had been in communication with the two kids still at home throughout the day. They are 14 and 15.. generally mature and great at keeping in touch with me. Until 7pm that evening. Then 2 and a half hours went by where we had absolutely no idea where my daughter was. 14 years old and it was all silence. More than a few minutes is already scary, this was unlike ever before.

I am a mother to five, yes five, amazing kids. They are far from perfect, but I was far from a perfect parent, we managed. Being in the arts and entertainment industry there is sometimes a fine line between what is private and what I talk about. Most of the time though I know I am not alone. I know there are other moms, parents, loved ones who are experiencing some of the things I go through and talking about it helps. It helps me ge…

Turning 21, Disney and a Girls Trip We Won't Forget

I just got back from a five day vacation to Orlando... While there is so much about this trip we will keep to ourselves because it was all so special I did want to briefly talk about it as a whole.

About six months ago my best friend in Virginia hit me up. Her oldest daughter was turning 21 in July and she really wanted to do something special for her. My oldest had just turned 21, who also happens to be her Goddaughter, and our girls had known each other since birth as we were there for the birth of each other's firstborns. Her idea was to come down to Orlando, stay at a nice resort or hotel and have the four of us hang out a few days at the pool, maybe a bar or two and hit up an amusement park.

This sounded amazing and it was before the car accident my youngest was in, as well as a few other things to recently hit our family. When the accident happened she asked me if we should cancel. I asked her please not to, I knew by the time it came around I was really going to need a few …

Pika Tacos: 6 Steps to Dinner

I post some pics of these from time to time and almost always people ask me what the heck they are.. I have tweeted how to make them before but I thought why not make a blog and fill you guys in on all the yummy details. Since being diagnosed allergic to gluten in October 2017 I have found it VERY hard to eat. Yes just simply eat. Gluten is in EVERYTHING! So from time to time I'll share some fun recipes you can make from home that are super safe because I break out in hives with even the tiniest amount of cross-contamination and I want to help anyone out there struggling with the same!

This is called Pika Tacos because a friend of mine named Pika used to make something similar after making spaghetti. She'd make a HUGE pot of sauce and when all the noodles ran out she would make tacos with the leftover sauce. I have not found a safe spaghetti noodle I like yet and I love these so I just skip the whole making spaghetti part, my kids and hubby don't even mind, and go straight…